Useful Links
Family Fund – Charity aiming to support, advise and possibly help with funds for families with severely disabled children.
www.familyfund.org.uk
Joseph Rowntree Foundation. Great resource to read about social research.
www.jrf.org.uk
Asthma UK. Lots of useful information.
www.asthma.org.uk
British Thoracic Society. Good for research and guidelines.
www.brit-thoracic.org.uk
International Ventilator Users Network. An Excellent source of information about living independently with a ventilator.
Spinal Injuries Association. Their motto is life needn’t stop when you are paralysed. Great source of information, support and advice for SCI patient’s families and professionals.
www.spinal.co.uk
Contact a family. The only UK wide charity providing advice, information and support to the parents of all disabled children no matter what their disability or health condition.
www.cafamily.org.uk
National Institute of neurological disorders and stroke. Great source of research based studies and information.
www.ninds.nih.gov
Long term ventilation. Information sharing and support for families and health professionals caring for children and adolescents.
www.longtermventilation.nhs.uk
